Nackard Pepsi

Jessica’s joy says it all: “I am a skier! Now I can ski with my family!” Jessica, 27, was born with a rare genetic condition known as COACH, which stands for cerebellar vermis aplasia, oligophrenia, congenital ataxia, coloboma and hepatic fibrosis. Only a few thousand people in the country are believed to have this syndrome in which part of the brain does not fully form. Most individuals with COACH have a cognitive disability, organ problems and difficulty with movement. For Jessica, life … [Read more...] about Rejoicing in the Gift of Participation